Epilepsy Durham Region
We are committed to promoting independence and optimal quality of life for individuals living with epilepsy and their families, through support, advocacy and public education.
Purple Day and Bunny Hop 2014 - Celebrate Epilepsy Awareness Month
Wednesday, March 26th is Purple Day and we want you to participate! Together we can help to raise awareness and reduce stigma for the 1 in 100 touched by epilepsy in Durham Region.
We invite all schools, day-care centres, businesses and City Council Members to join us a help paint our community PURPLE.
It's as easy as 1-2-3:
1. Complete the appropriate Registration Form below and return by fax: (905)-430-3080 or e-mail: firstname.lastname@example.org
2. Encourage staff, students and co-workers to wear Purple on March 26th
3. EDR can provide you with materials to promote Purple Day throughout the month of March in the school or office
4. Hold a fundraiser i.e. dress-down day, Purple Cupcake Bake Sale, etc. to support Epilepsy Durham Region (optional)
We hope that you can join us. For more information please contact Jessica at email@example.com or (905)-430-3090
Thank you to the following schools for registering for Purple Day 2014:
Carruther's Creek Public School, Good Shepherd CES, Henry Street High School, Jack Miner Public School, Harmony Heights Public Shool., Quaker Village Public School, Sir Samuel Steele Public School, St. Theresa C.S., St. Mary Catholic Secondary, St. John the Evangelist, Sir John. A Macdonald Public School, Monsignor Paul Dwyer C.H.S, and Sinclair Secondary School.
Thank you also to The Municipality of Clarington and the following day care centres for registering for our Bunny Hop Campaign: Four Winds Montessori Schoo, Helping Hands Daycare - Rougemount, Schoolhouse Playcare - Applecroft
Be part of this international movement.
The Epilepsy Journey - By Seniors for Seniors
Book your In-service Presentation Today - With the generous funding of Green Shield Canada Epilepsy Durham Region is happy to announce our Seniors Presentations available to all Seniors Centres and Retirement Residences in the Durham Region. All you have to do is download the Registration Form below, complete it, and return to Jessica by fax (905)-430-3080 or e-mail clientservices@epilepsydurham. With seniors and children representing 60% of new epilepsy diagnoses, we are looking forward to increasing education and understanding in our senior populations.
Epilepsy Durham Region is excited to announce that we will be climbing the Grand Canyon in support of those living with epilepsy in the Durham Region. This 4500 foot journey is no small endeavour and we know that the impact this will have in our community will be even bigger than the adventure. To find out more about the Epic Climb for Epilepsy - Grand Canyon 2014 visit www.epicclimb.ca
If you would like to make a donation to the Epic Climb campaign visit our Canada Helps page at https://www.canadahelps.org/CharityProfilePage.aspx?CharityID=76577 or pop in to say hello at our office.
We sincerely appreciate your support.
Global News Reporter Mark McAllister highlights Community Support
Read the online report at www.globalnews.ca or watch the full news report online at http://globalnews.ca/news/1163364/durham-woman-says-those-with-epilepsy-face-a-lack-of-support/
MEDICATION ALERT: Clobazam
It is come to the awareness of local community agencies that there is a shortage of clobazam at some community pharmacies. Unfortunately, we do not have any further details at this time and we do not know whether the shortage is affecting a single brand of clobazam or if multiple brands are affected.
If you take clobazam we suggest that you contact your pharmacy and ask about the supply of your medication.
If your pharmacist is unable to fill your prescription contact your health care provider immediately. Do not make any changes to your treatment (i.e. skipping doses, reducing the dose, or discontinuing the drug) without consulting your health care provider. If there is a shortage of your anti-seizure drug your physician or nurse practitioner can discuss this with you and develop a treatment plan to most safely manage your epilepsy.
Please contact Epilepsy Durham Region if you have any concerns about your medication and/or accessing your Clobazam prescription at pharmacies within the Durham Region. Contact: firstname.lastname@example.org or (905)-430-3090.
Canadian Epilepsy Alliance Press Release
CEA-ACE Calls for Increased Training and Education to Better Understand and Respond to Incidents Involving People Living with Epilepsy...to read more please download the PDF of the Press Release by following the link below.
Student Support Program - Thinking About Epilepsy
Epilepsy Durham Region is proud to offer a wide range of services to assist your child while at school. We offer in-service presentations in the classroom that educate students on epilepsy, how to recognize a seizure, seizure first-aid and side effects of medications. This ensures your child's classmates as well as their teacher(s) is aware of what epilepsy is and how to best accomodate and advocate for him/her.
Additionally, we are happy to launch our Thinking About Epilepsy Grade 5 Program which teaches students about epilepsy, seizure first-aid and the human body. Though this interactive program fits into the cirriculum expectations for grade 5 science classes in Ontario, we can adapt the presentation materials to students of all ages. The main goal: to dispel myths and create a school environment which is empathetic, understanding and supportive of students living with epilepsy.
For more information on our in-service presentations and Thinking About Epilepsy Program download the forms below or contact email@example.com
Check out the new Gift Line for Fall/Winter 2013
Epilepsy Durham Region has new items to offer for this upcoming Fall/Winter season. Check out our new scarves and canvas to keep both your wardrobe and home in style this season. Also we have new Epilepsy Durham Region silicone bracelets available in Purple - a bold take on our traditional lavender Epilepsy Matters wristbands! Many of our most popular items are also still available including our Lavender Body Mist, Lora the Lavender Labrador, and Glitter Costume Bracelet. Download a flyer and order form below or visit the office and check them out today!
Canadian Epilepsy Alliance Releases Statement on Bloc Leader’s Resignation
NEWS STATEMENT – FOR IMMEDIATE RELEASE
The Canadian Epilepsy Alliance (CEA) thanks Mr Daniel Paillé for speaking publicly about his epilepsy. Maintaining a balanced and healthy lifestyle is one of the self-management strategies key to seizure control. Approximately 70% of people diagnosed with epilepsy are able to obtain seizure control through the use of anti-seizure medication and lead typical lives.
On behalf of the 300, 000 Canadians living with epilepsy, the CEA wishes Mr Paillé all the best.
Medical Marijuana: Parents urge for trials in Canada
Nine-month-old Kaitlyn Pogson suffers from Dravet syndrome, a severe form of epilepsy that results in frequent seizures - up to 300 per day. Her parents are encouraged by stories out of Colorado, where a special strain of cannabis is reducing the number of seizures suffered by children with otherwise untreatable epilepsy. To read more about the tests in Colorado as well as Kaitlyn's parents efforts urging for trials in Canada follow the link below.
Epilepsy Montreal Congress 2013
The Montreal Congress 2013 has updated its abstract and speaker presentations onto their website. There were over 75 presentations with topics ranging from psychosocial effects and social issues to medical advancements and neuroimaging techniques. Click the link below to watch the highlights video and to check out some abstracts as well as select speaker presentations that interest you.
Role of Seizure Dogs Expanding
A June 4th radio interview on CBC Radio One discussed the expanding role of seizure dogs in persons with disabilities. The discussion of seizure dogs scope as well as their impact on quality of life to their owners reveals the signficant role they play in our community. Listen to the full interview by clicking here.
There has been information released from Pfizer addressing the recent national supply struggle on Dilantin. To find out more information click on the link below.
Download the PDF here
In consultation with Health Canada, four companies (Cobalt Pharmaceuticals, Laboratoire Riva, Mylan Pharmaceuticals and Sanis Health) are voluntarily recalling various lots of five prescription drugs (amlodipine, ciprofloxacin, lamotrigine, norfloxacin and telmisartan) from the Canadian market (see…
ONE in 20 children whose mothers used a drug to treat epilepsy during pregnancy suffers from an autistic disorder, research suggests.
Sample of Notification…
Pfizer has reported that they are experiencing a shortage of Neurontin tablets (600 mg) which is expected to be resolved by March 15, 2013.
Epilepsy Ontario contacted Pfizer's customer service department and learned that all other strengths of Neurontin are available: 100 mg, 300 mg and 400 mg…
1. Continuing Studies Award
2. President's Award of Distinction