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Alongside Community Epilepsy Agencies coast to coast, and the Canadian Epilepsy Alliance, we are launching the #Iam1in100 campaign in March 2020. Download the material below and help expand the representation of what it means to live with epilepsy.

 

If you have epilepsy, download the sign that says “I have epilepsy and…” In the blank space provided, you can write about how you’re feeling or how you’re handling having epilepsy. You can also write about your hobbies, interests, skills, and life beyond epilepsy.

 

If you know someone with epilepsy, download the sign that says “Someone I care about has epilepsy and…” In the blank space provided, you can write about their hobbies, interests, skills, and life beyond epilepsy.

 

The campaign highlights the range of experiences of living with epilepsy and that people with epilepsy are more than just their epilepsy.

 

Alongside Community Epilepsy Agencies coast to coast, and the Canadian Epilepsy Alliance, we are launching the #Iam1in100 campaign in March 2020. Download the material below and help expand the representation of what it means to live with epilepsy.

 

If you have epilepsy, download the sign that says “I have epilepsy and…” In the blank space provided, you can write about how you’re feeling or how you’re handling having epilepsy. You can also write about your hobbies, interests, skills, and life beyond epilepsy.

 

If you know someone with epilepsy, download the sign that says “Someone I care about has epilepsy and…” In the blank space provided, you can write about their hobbies, interests, skills, and life beyond epilepsy.

 

The campaign highlights the range of experiences of living with epilepsy and that people with epilepsy are more than just their epilepsy.

 

HERE’S HOW YOU CAN PARTICIPATE

  1. Download and print a sign
  2. Fill in the blank space
  3. Take a photo while holding the sign
  4. Upload your photo to social media using #Iam1in100 (for people with epilepsy) and #1in100, or email us your photo at This email address is being protected from spambots. You need JavaScript enabled to view it. (please note the photo release below)

 

If you upload your photo to social media, please tag us and the Canadian Epilepsy Alliance with the social handles below.

 

1IN100 2SOCIAL MEDIA HANDLES

Facebook:         @EpilepsyDurham      @ceaofficialnews
Twitter:   @Epilepsy_Durham   @ceaofficialnews
Instagram:   @epilepsy_durham   @ceaofficialnews

 

MATERIALS

"I Have Epilepsy And..." Sign (8.5" x 11")

"Someone I Care About Has Epilepsy And..." Sign (8.5" x 11")

Small Poster (8.5" x 11")

Large Poster (11" x 17")

Photo Release

 

 

**Please note, by sharing your photo with us, you understand that we will share the photo on our website and social media platforms. 

 

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SEIZURE DETECTION THROUGH WEARABLES: YOUR OPINION MATTERS!

 

 

The Canadian Epilepsy Alliance is asking people with epilepsy to complete a quick survey to share opinions and expectations regarding seizure detection wearable devices in order to guide future research.

 

Click here for more information and to complete the survey.

 

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Health Quality Ontario is the provincial lead on the quality of health care. We are motivated by a single-minded purpose: Better health for all Ontarians. They believe that working together, we can bring meaningful improvement in healthcare. 

 

Quality standards outline for clinicians and patients what quality care looks like. They focus on conditions or topics where there are large variations in how care is delivered, or where there are gaps between the care provided in Ontario and the care patients should receive. Please find links below to new quality standards issued by the Quality business unit at Ontario Health. Each comes with its own patient guide and recommendations for system adoption.

 

  • qs anxiety patient guide sHealth Quality Ontario is the provincial lead on the quality of health care. We are motivated by a single-minded purpose: Better health for all Ontarians. They believe that working together, we can bring meaningful improvement in healthcare. 

     

    Quality standards outline for clinicians and patients what quality care looks like. They focus on conditions or topics where there are large variations in how care is delivered, or where there are gaps between the care provided in Ontario and the care patients should receive. Please find links below to new quality standards issued by the Quality business unit at Ontario Health. Each comes with its own patient guide and recommendations for system adoption.

     

     

    Questions regarding these standards, which have been shared broadly with health system partners, may be directed to This email address is being protected from spambots. You need JavaScript enabled to view it.

    .

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Community Epilepsy Agencies across Ontario are advocating for funding from the provincial government for epilepsy education and support programs across Ontario, and we need your help to make it happen. 

 

In Ontario, 95,000 people live with epilepsy, and Community Epilepsy Agencies, like Epilepsy Durham Region, make a huge impact, educating and supporting individuals and families touched by this disease. Our programs benefit both people affected by epilepsy and the healthcare system, yet these core programs are not funded by the provincial government. Even basic epilepsy education about when a seizure is or isn’t an emergency can reduce the thousands of unnecessary trips to the Emergency Room every year, reducing the province’s Hallway Healthcare crisis and saving the healthcare system millions of dollars. With a modest investment from the provincial government, Community Epilepsy Agencies

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VOLUNTEER 4

 

It’s a new decade! Considering rolling up your sleeves and making a difference in your community for 2020?

Try your hand with volunteering for Epilepsy Durham Region!


There are so many ways to volunteer and make a difference to the lives of people affected by Epilepsy. Whether you’d like to volunteer at our Bingo days, helping a family in need, or as a board member, we could certainly use your help and expertise. If your ideal role isn’t listed, don’t worry, we have volunteers who have offered a wide range of unique skills from photography to garden help.

 

We are currently looking for the following roles to be championed by energetic and passionate people; could you be the one? We hope so!

 

 

 

VOLUNTEER ROLES AVAILABLE:


Bingo

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