During the 2019 federal election campaign, Neurological Health Charities Canada (NHCC) is asking political parties if they will work with us to improve the lives of Canadians affected by brain conditions. NHCC is a coalition of 12 organizations that represent over two million Canadians living with brain conditions (diseases, disorders and injuries). we encourage you to spread the NHCC message during the campaign.
Below are three questions that NHCC is asking all parties and as many candidates as possible. When you have the opportunity to meet candidates, please ask these key questions and then rate them on their answers. Please try to get them to be as specific as possible.
For more information about the issues including two key documents that provide valuable background, please visit the NHCC website.
- Action Plan for Brain Health: Driving research to action
- NHCC recommendations summaryNHCC recommendations summary
Quetions for Candidates:
Brain health is critical to the lives of all Canadians. NHCC believes a basic right of Canadians living with brain conditions is unrestricted access to the best treatments, community and patient care supports. This right can only be fulfilled if governments commit to investing in both high-quality brain health research and health and community supports, regardless of their location or community. Where does your party stand on working with Neurological Health Charities Canada (NHCC) and its member organizations to establish a Canadian Brain Council to lead much needed collaboration with healthcare providers and brain health charities for research and patient care services that would benefit Canadians affected by brain conditions?
Brain conditions often lead to disability. We know, because of ground-breaking Canadian research, this means leaving a job prematurely, not being able to work at all, or requiring access to mobility equipment, expensive medications, therapies, adaptations to homes or specialized transportation. Income insecurity also affects caregivers. Nearly a quarter of parents, whose children have a brain condition, reported financial problems such as pay cuts, demotions and/or the ability to work outside the home. Where does your party stand on supporting Canadians living with brain conditions, their families and caregivers, by improving and expanding existing income support programs and tax credits? For example, increasing the amount of caregiver tax credits, making EI sickness benefits more flexible to allow people to return to work part-time? What other supports would your party initiate?
Individuals with brain conditions face disjointed, fragmented care across multiple settings and care providers. Currently, there is a lack of knowledge or awareness of brain conditions among health service providers and limited availability and/or accessibility of necessary services, particularly for people living in rural areas. Where does your party stand on the Government of Canada leading a demonstration study of an expanded chronic care model for neurological conditions that integrates health and support care services to deliver better and more coordinated care for people affected by brain conditions?
Thank you very much for your help! Brain health is important to so many.