Hiiiiiiiiii! My name is Ava and I am an Epilepsy Durham Region Youth Ambassador (you can see some of my work on my very own ambassador page here). I am 10 years old and am excited for you to hear about my Neurology Epilepsy Monitoring Unit (EMU) 5 day hospital stay! This EMU visit will help doctors and me and my family understand more about my seizures. I hope you enjoy discovering epilepsy through my journey!
October 7th, 2019 | Day 1 of 5
The struggle is real for Ms. Ava tonight. Weaning off her medication makes her feel off and has caused some nausea. We were up at 5:15 am and have to stay awake until 11:00 pm, the IV is hurting, probably some cabin fever, and now she has to have heart monitors on for the night. There are more cords and wires than ever before. She is fading and wants to sleep but we are down to our last hour of the day. She is a trooper but my heart breaks for her as I am sure it is overwhelming with all of the unexpected and additional tests.
Tomorrow is a new day and I sure am proud of her. She has a lot of new books and toys to help her keep her mind busy and we are grateful to Epilepsy Durham Region for the amazing care package they provided.
Cindy, Ava's Mom